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Events in Aotearoa NZ 

Families and supporters of The Angelman Network regularly organise gatherings and participate in public events across the country. We do this to connect, enjoy time together, fundraise, network, and build community support. As our local communities learn more about Angelman syndrome, so stronger community support networks are built around our families. 

We encourage and participate in the following types of events:

Raising awareness across the motu - one community at a time

 

Social Family Gatherings

The Angelman Network encourages all our families to arrange social meet-ups at family-friendly venues around the country, whenever possible. Nothing beats talking to other families and meeting their loved one with Angelman syndrome. Friendships made at these social gatherings last a lifetime and everyone stays connected via our Facebook support groups. If you are keen to organise a gathering in your area, we can help to get the word out and advertise your event.  

Fundraisers

Friends and families in NZ volunteer their time to raise funds for The Angelman Network in a variety of ways. Families have organised Sausage sizzles, Christmas wrap Collection Buckets, a Fundraiser Auction, Raffles, Movie nights, a Walkathon, a Colouring-in Competition, and even a MotorCross Day!! These events not only raise funds, they also raise awareness for Angelman syndrome and bring people together in their communities, strengthening the Circles of Support around families.  

We have had fitness teams - the Action Angel team and For The Angels team - who entered local Fun Runs and competed at other sporting events around the country wearing white angel-wings. As well as getting sponsors to raise funds, they approached local newspapers to raise awareness for Angelman syndrome in NZ.  Anyone can support our cause and pop an instant donation on our Givealittle site !

To find out more about organizing a fundraiser, see here.

AS Information Stands 

The Angelman Network is always looking out for opportunities to distribute information on AS and network nation-wide in NZ.  We do this with table displays, posters and publications. If you would like to help us share information and raise awareness at a suitable event in your community, please contact us. We can assist you with the promotional material and resources to set up a display table anywhere in New Zealand.

International Angelman Day activities 

IAD is a global day of awareness that all families can and should participate in. Please keep in touch and let us know if you want to have event in your community. We can support you, contact families in your area, and send flyers and brochures for you to distribute. See more at International Angelman Day 

STAY IN TOUCH ON SOCIAL MEDIA

Social media platforms are used to:

  • Connect families around the world

  • Raise global awareness for Angelman syndrome/all rare conditions

  • Share new research information

  • Encourage open discussion forums for new therapeutics

  • Gather general & specific data and information

  • Advocate for treatments

  • Fundraise effectively

  • Help find participants for trials

          and much more….

See Social Media

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The Angelman Network is a

Registered Charitable Trust based in New Zealand

CC46746.

angelmannetwork@gmail.com

Disclaimer: Links to other Internet sites are for the convenience of all web-users. The Angelman Network is not responsible for the availability or content of these external sites and we do not endorse, warrant or guarantee any products, services or information that may be offered at these sites.

Always contact your own medical practitioner for any medical advice.

Information about Angelman syndrome and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication, some facts may change later.

©2025 The Angelman Network

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