WHAT WE DO
The Angelman Network is New Zealand's only organization focused on providing current information about Angelman Syndrome. We share resources through our website, social media, and newsletters, keeping families connected and supported through advocacy, public awareness, gatherings, and fundraising activities.
The Angelman Network (TAN) is managed by a board of trustees who volunteer their time and expertise. We are proactive members of the Rare Disorders NZ collective and the NZ Carers Alliance. To find out more about what we do, see our 2024 Annual Report here.
Network
We aspire to source and distribute evidence-based information on Angelman Syndrome. We network with affiliated organisations in NZ, local councillors and politicians in NZ, researchers and research teams (NZ and global), professionals and specialists working with people who have AS, and other AS organisations around the world.
Support & Advocacy
We connect families in New Zealand who are affected by AS. We also support them by collaborating with affiliated organisations in NZ that advocate for rare disorders, for AAC (communication support), access to appropriate medication, an accessible society, inclusion in schools, and the wellbeing of caregivers.
Resources & Publications
This website is our Primary Resource. It is regularly updated with the most current information on Angelman syndrome.
Families in NZ can contact us for an Information Pack.
A range of other publications, resources, media articles
and important links, can be found on our Resource page.
Grants
Due to the small population of NZ, and the rarity of Angelman syndrome, we provide small grants for research on Angelman syndrome and/or research on matters affecting social policy and funding that could benefit our NZ families. We also provide Family Grants to assist families to attend conferences/workshops related to Angelman syndrome.
OUR AFFILIATES
GLOBAL ANGELMAN REGISTERY
INTERNATIONAL ANGELMAN DAY
NZ CARERS
ALLIANCE
ANGELMAN ACADEMY
ACCESS ALLIANCE
RARE
DISORDERS NZ
RARE DISEASE
DAY
TALKLINK
TRUST NZ
INCLUSIVE EDUCATION ACTION GROUP
EPILEPSY
NEW ZEALAND
