GRANTS
The Angelman Network (TAN), our families and supporters, run regular fundraisers to build our capital, so that we can offer two types of grants:
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Research Grant
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Family Grant
RESEARCH GRANT
The Angelman Network offers research grants of up to $5,000 to any research project that would benefit individuals with Angelman syndrome and/or their families in Aotearoa NZ. Though we prefer to fund research in NZ, we do also consider funding overseas projects that will help to provide immediate benefits to families in NZ.
Download the application form HERE. Email your completed form and support information to:
Should your application be approved, we will require a final report on the results of your project once it is completed, and details on how the funds were used.
FAMILY GRANT
The Angelman Network offers a Family Grant of $300 per annum to eligible NZ families, towards costs related to attending conferences/workshops that will directly benefit the person with Angelman Syndrome. This grant can be used to assist with registration fees, accommodation, transport costs/flights.
Criteria: Applicants must be NZ citizens/permanent residents and must be signed up on the GLOBAL ANGELMAN SYNDROME REGISTRY.
Download the application form HERE
Email your completed form and support information to:
TAN Funded Research
2018 - 23
Laurie McLay, Senior Lecturer at the University of Canterbury and Associate Professor Karyn France carried out a research project investigating the effectiveness of treatments for sleep disturbance in children with Rare Genetic Neurodevelopmental Disorders (RGND). The Angelman Network supported this with a grant and helped to source families to participate in the study. See link to Sleep study.
2017 - 18
Hemant Thakker completed his Doctoral Research on ‘When I am no longer alive – understanding the wishes, worries and support needs of parents of severely disabled adults.’ The findings of this study will assist in making useful recommendations to policy makers in NZ on designing service models that are both efficient (in terms of cost) and effective in terms of their usefulness to meet the needs of severely disabled adults and their families. The Angelman Network supported this study with a grant and helped source families to participate. See final paper on Succession Planning.
2015 - The Angelman Network was a sponsor for the Angelman Literacy Project’s summer road trip – a series of workshops run by Erin Sheldon and held across the USA. The aim was to collect important source material and research data on Angelman syndrome and Communication. The Angelman Network supported this project with a grant and assisted with the design and publication of Angelman Syndrome For Educators, by Erin Sheldon.