ABOUT US
The Angelman Network was established in 2009 and registered as a Charitable Trust in Aotearoa New Zealand in 2011. Our current Board of Trustees are spread out across the motu/island, and meet online four times a year. They all volunteer their time and expertise to work on achieving the objectives of the Trust Deed.
We are always looking for more families to get involved and encourage expressions of interest to join our Board. The AGM is held in July/August each year. To find out more, see What We Do
Ursula Christel
Chairperson
Kia ora koutou, I am a founding member of The Angelman Network trust. I am a qualified Art/Art History teacher and a social practice artist with a passion for inclusion. I have three adult sons, one of whom has Angelman Syndrome.
Nicola Eley
Treasurer
Kia ora koutou, I am a teacher and school Principal. My husband and I live in Auckland and work together at a local primary school. My association with The Angelman Network is through a close friend who has a grandson with Angelman syndrome.
Tareen Ellis
Trustee
Hello, I have worked within a broad range of sectors, focusing on people leadership, commercial management, strategic planning and change management skills. I hold a BCom Hons and have a Master's in Psychology. I have two beautiful boys; my youngest has Angelman Syndrome.
Alison Barta
Trustee
Kia ora, I lived abroad in eastern Europe for many years and have settled back in Wellington, the capital of New Zealand. I have two sons, one of whom has Angelman syndrome. I bring my experience as a parent-caregiver to the Board, and as a parent-rep from the Wellington region.
OUR STORY
The Angelman Network is a family/whānau driven organisation based in New Zealand that connects and supports those impacted by Angelman syndrome.
We are the only organisation in New Zealand dedicated to providing up-to-date information on Angelman Syndrome. We share information on our website, social media sites and newsletters, and keep families connected and supported through social media, family gatherings and fundraising activities.
The Angelman Network is a Registered Charitable Trust (CC46746). To achieve our objectives we actively network with aligned organisations, MPs, families, professionals, specialists, and research teams - both in NZ, and around the world.
We are deeply appreciative of the expertise and generous support of Webster Malcolm Law, Warkworth - for their assistance in helping us update our Trust Deed in August 2020.
OUR PRINCIPLES
1. MĀTĀPONO / PRINCIPLES
1.1 The Trust is committed, in attaining its purposes, to:
(a) respecting and implementing the dual heritage of the partners of Te Tiriti o Waitangi (the Treaty of Waitangi);
(b) respecting the cultural diversity of people and encourage people from all nationalities to utilize the Trust’s facilities and services.
1.2 Our principles:
(a) The Angelman Network is a NZ support network with a global web presence, which aims to enhance the lives of people with Angelman Syndrome in New Zealand. We aim to be an inclusive, collaborative, and transparent organisation that operates with integrity and respect for all cultures.
The IAD Collective
The Angelman Network was a founding organisation of the International Angelman Day Collective, established in 2012. Since the inaugural IAD event in 2013, the number of AS organizations that joined the global collective to celebrate IAD, has almost doubled.
The Angelman Network volunteered to set up the first IAD website, fund, and manage it, as well as the official Facebook Page. After managing the event for 10 years, we handed over the baton to the ASF, who has taken on this role for the past 2 years. We keep an updated list of all the groups around the world. This contact information is invaluable should anyone wish to get in touch with an AS organization.
We are a registered Charity in NZ (CC46746)
You can help to support the work that we do, by contributing a donation to our Givealittle Page here.
Or make a direct bank transfer to:
The Angelman Network Trust - ANZ Bank 06-0817-0352270-00
All donations are gratefully received.
Contact The Angelman Network at angelmannetwork@gmail.com