NEWS
2025 is going to be an epic year for our Angelman community in Aotearoa NZ!!
Our February focus is on the GLOBAL ANGELMAN SYNDROME REGISTRY - and we'll be using IAD as an opportunity to spread the word nation-wide, about our Collect Date, Create Change, initiative.
Rare Disease Day (28 Feb) kickstarts Rare Disorders Awareness Month in Aotearoa NZ! More on that coming soon.
Keep up with the latests news here or follow our FB page.
01/02/2025
Data Today, Treatment Tomorrow
NZ Family Webinar - FREE
Presented by Meagan Cross, CEO of FAST AU
We want to encourage ALL our kiwi families to attend! From the comfort of your own home, hear first-hand all about the Global Angelman Syndrome Registery - and the reasons why our main focus this year is to collect data for Aotearoa NZ!
To register, please email: angelmannetwork@gmail.com
Collect Data, Create Change!
For International Angelman Day 2025, our focus is the REGISTRY SIGN-UP CHALLENGE!! We have no accurate data on AS in Aotearoa NZ, and intend to go all out to GROW our numbers on the Global Angelman Syndrome Registry. More info at IAD events.
We encourage families to enjoy local gatherings across the motu, to celebrate this global day together! Please contact us so that we can promote your event and support you in any way we can.
24-28/02/2025
Rethinking AAC & AAC Practice
Presented by: Erin Sheldon and Dr David Niemeijer
A 4-hour workshop hosted by ATANZ - suitable for SLPs, OTs, and school AAC coaches. Whānau and clinical students are also welcome.
Workshops to be held at 4 venues across the motu! If you are able to attend, we encourage you to make the most of this amazing opportunity! Whanau fee will be reimbursed by TAN.
Please email us once you have registered for a workshops: angelmannetwork@gmail.com
For more info and to register with ATANZ, please go to their website here
28/02/2025
Rare Disease Day
LIGHT UP FOR RARE!!
February is a busy time for New Zealanders and the Government alike, as we settle back into business after summer. This is why the RDNZ Alliance has chosen the month of March for Rare Disorders Month, kicking off on the last day of February - Rare Disease Day. As a member of the RDNZ Alliance, The Angelman Network encourages all our families & whanau to support this collective initiative. More info coming soon.
