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Angelman Syndrome Organisations

Angelman Organisations and Support Groups around the World

International Angelman Day brings together AS organisations from around the world. Organisations vary in their objectives and formal structure. Some are formal registered charities, others are informal parent support groups.

Organisations and groups are listed here in alphabetical order:

Argentina

Australia

 

Austria

 

Belgium

 

Brazil

 

Canada

 

Canada - Regional & Provincial Organisations

 

Chile

  • ANGELMAN CHILE - facebook group for families in Chile

  • Familias Angelman Chile - National website for families in Chile (Sitio web nacional para las familias en Chile)

  • Familias Angelman Chile - National Facebook page for families in Chile (La página de Facebook Nacional para las familias en Chile)

 

Colombia

  • SINDROME ANGELMAN COLOMBIA - facebook group for families & professionals in Colombia (Grupo de Facebook para las familias y los profesionales en Colombia 

 

Czech Republic

 

Denmark

 

Eastern European countries

 

Ecuador

  • Síndrome de ANGELMAN - ECUADOR - facebook group for families & professionals in Ecuador (Grupo de Facebook para las familias y los profesionales en Ecuador)

 

Europe

 

Finland

 

France

 

Germany

 

Greece & Cyprus

  • National Association Angelman Syndrome Greece & Cyprus – www.angelman-syndrome.gr

  • Facebook group: Angelman Syndrome Greece & Cyprus/Σύνδρομο Άγγελμαν Ελλάδα & Κύπρος –  Angelman Greece

 

Guatamala

 

Hong Kong

 

Hungary

 

India

 

Ireland

 

Israel

 

Italy

 

Japan

 

Malaysia

 

 

Mexico

 

Morocco

 

Netherlands

 

New Zealand

 

Norway

 

Philippines

  • Angelman Syndrome Philippines - National association Facebook page for families in the Philippines (Pambansang Facebook pahina association para sa mga pamilya sa Pilipinas)

 

Poland

  • Zespołowi Angelmana Polska - Facebook page for families of individuals with Angelman Syndrome and professionals (Facebook Strona dla rodzin osób z zespołem Angelmana i specjalistów w Polsce)

 

Portugal

 

Puerto Rico

 

Russia

 

Slovakia

 

South Africa

 

South Korea

 

Spain

 

Sweden

 

Switzerland

 

Turkey

United Kingdom

 

Uruguay

 

USA

 

USA - Regional Organisations

 

USA - State Organisations

 

USA - Cities

 

Venezuala

 

Vietnam

  • Angelman Vietnam (Angelman Việt Nam) - Facebook page for families of children with Angelman Syndrome in Vietnam (Facebook trang cho gia đình có con bị hội chứng Angelman tại Việt Nam)

STAY IN TOUCH ON SOCIAL MEDIA

Social media platforms are used to:

  • Connect families around the world

  • Raise global awareness for Angelman syndrome/all rare conditions

  • Share new research information

  • Encourage open discussion forums for new therapeutics

  • Gather general & specific data and information

  • Advocate for treatments

  • Fundraise effectively

  • Help find participants for trials

          and much more….

See Social Media

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The Angelman Network is a

Registered Charitable Trust based in New Zealand

CC46746.

angelmannetwork@gmail.com

Disclaimer: Links to other Internet sites are for the convenience of all web-users. The Angelman Network is not responsible for the availability or content of these external sites and we do not endorse, warrant or guarantee any products, services or information that may be offered at these sites.

Always contact your own medical practitioner for any medical advice.

Information about Angelman syndrome and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication, some facts may change later.

©2025 The Angelman Network

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